Alfie Marchant was born on 21st June 2007 to proud parents Tony and Jenny. Following his 3rd birthday it was noticed that his speech and aspects of his coordination were less developed than other children in his nursery class.

Although their fears were initially dismissed by medical professionals, after a series of medical tests, Alfie was eventually referred to specialists at the Great Ormond Street Hospital for Sick Children.

In June 2010 Alfie was diagnosed with Duchenne Muscular Dystrophy, a severe muscle wasting condition affecting around 100 boys each year.

Alfie’s muscles will be become progressively weaker and his health will deteriorate. He will be wheelchair bound within the next few years. There is currently no cure, he is not expected to live beyond his early twenties.

The family now also have the torment of waiting several months to see if their younger son, Arthur, born in February 2010, also has the condition.

What can we do to help?

With his condition progressing, Alfie requires specialist equipment to improve and support his quality of life.

Family, friends and work colleagues are planning a number of events to raise funds, supporting both the family and research through Muscular Dystrophy organisations.